Cookies and Crayons

It’s hard to imagine that with such an adorable head anything could be wrong with little Connie. Unfortunately, sometime in the last month or so, she’s developed a ridge along the top of her skull. We first noticed it about two weeks ago but didn’t think much of it. After some Googling (not really my friend in these sorts of situations) we decided that we should get someone to have a look.

Notice how her head comes up into a bit of a point behind her soft spot

The doctor in Calgary referred us to a pediatrician. They felt it was urgent but weren’t going to be able to see us for several weeks. By this point, we (okay, it was mostly me) had worked ourselves up into a bit of a tizzy about the whole thing. So, based on the advice of our pediatrician in Dallas, we decided to bring Connie back to see him.

Still cute, but definitely a ridge

Our doctor referred us to a craniofacial surgeon to be evaluated further. We were able to meet with him on the same trip. By all accounts, this is “the guy” to go to and he just happens to work in Dallas. In a nutshell, he told us 3 things:

1. Connie has a condition called craniosynostosis. This means that two of her skull plates (which are normally free-floating in an infant) have fused together. In her case, it is her sagittal suture (starting behind the soft spot and going to the crown of her head).
2. However, other than the ridge itself, she is doing great — she’s not showing any other symptoms, which is really good news. Typically this would result in an altered head shape as it grows, but right now Connie’s head is perfectly shaped.
3. So, while most babies with this condition require surgery to correct it, the specialist was not worried about her — in his opinion, she’s likely to develop just fine and will not likely need any surgery. We’re keeping an eye on it, and we need to go back to be evaluated in 6 months but at this time, it doesn’t look like anything further will be required.

We likely will get a second opinion for our peace of mind but at this time, it’s as good news as we could hope for. Meanwhile, she’s been smiling up a storm and doing a great job at surviving the constant attention of her big brother.