Cookies and Crayons

It’s hard to imagine that with such an adorable head anything could be wrong with little Connie. Unfortunately, sometime in the last month or so, she’s developed a ridge along the top of her skull. We first noticed it about two weeks ago but didn’t think much of it. After some Googling (not really my friend in these sorts of situations) we decided that we should get someone to have a look.

Notice how her head comes up into a bit of a point behind her soft spot

The doctor in Calgary referred us to a pediatrician. They felt it was urgent but weren’t going to be able to see us for several weeks. By this point, we (okay, it was mostly me) had worked ourselves up into a bit of a tizzy about the whole thing. So, based on the advice of our pediatrician in Dallas, we decided to bring Connie back to see him.

Still cute, but definitely a ridge

Our doctor referred us to a craniofacial surgeon to be evaluated further. We were able to meet with him on the same trip. By all accounts, this is “the guy” to go to and he just happens to work in Dallas. In a nutshell, he told us 3 things:

1. Connie has a condition called craniosynostosis. This means that two of her skull plates (which are normally free-floating in an infant) have fused together. In her case, it is her sagittal suture (starting behind the soft spot and going to the crown of her head).
2. However, other than the ridge itself, she is doing great — she’s not showing any other symptoms, which is really good news. Typically this would result in an altered head shape as it grows, but right now Connie’s head is perfectly shaped.
3. So, while most babies with this condition require surgery to correct it, the specialist was not worried about her — in his opinion, she’s likely to develop just fine and will not likely need any surgery. We’re keeping an eye on it, and we need to go back to be evaluated in 6 months but at this time, it doesn’t look like anything further will be required.

We likely will get a second opinion for our peace of mind but at this time, it’s as good news as we could hope for. Meanwhile, she’s been smiling up a storm and doing a great job at surviving the constant attention of her big brother.

We have started working with Dougie on his writing. Our first step is to get the basic motions of holding a pen, making straight strokes and control. We got a book that has “tracing” practice. It is mostly drawing lines from one object to another. Dougie loves doing it though.

The fact that Dougie is left handed has added some complications to the process. We’re working hard to not have him write with a “hook” type hand. We’ve found several suggestions online as well a from friends so I think we’re just about on top of that.

Focusing hard

The results

I should note that these were the first ones he did. He’s improved a lot in only a few days.

Erasing his work

You may notice that the pages are all in plastic. We bought Dougie a few Kumon books and ripped out the pages. Each page was then put in a plastic sleeve and we use dry erase markers to do his work. It allows us to go back and re-do the pages as many times as he wants. Since he asks to practice at least twice a day – it’s worked out well.

What with Connie’s birth, Dougie’s birthday, Christmas, and a relocation to Calgary, it’s been a busy couple of months for the Sharabura clan. So what better way to cap it off than hosting a crowd of out-of-town relatives??

Grandma & Grandpa Sharabura came up to visit from Vancouver, and Auntie Suz was able to fly up as well. We had a fantastic time — it was everybody’s first opportunity to meet Connie, and it had been a while since they had seen Dougie. They got to see a big difference, with Dougie now able to talk much more clearly and engage in conversation — coming up with entertaining phrases such as “no nap, stay here!” and “help, over there, fall down, on the drop!”

We were also able to celebrate Grandpa’s birthday with a nice dinner and apple pie, and Dougie taught everyone about the various details of Bob the Builder characters. Connie’s still learning how to entertain visitors but luckily being small and cute is enough to make a good first impression.

Couple of photos from the weekend…

Auntie Suz seemed to like having another girl in the family

Grandma and her newest granddaughter

… and over to Grandpa!

Dougie really digs looking at pictures of himself on digital cameras…

I’ve got a baby and I’m not afraid to use it!

The visitors had great timing — Connie was just entering into mega-smiley mode for their visit…

Dougie and Auntie Suz

We also took a drive out to Banff, to take a look at the mountains and wander through town…

Dougie and Auntie Suz in Banff

Dougie, Grandpa and a horse

In Banff, evidently there’s a burger place that delivers… Dougie now has a job lined up for when he turns 16.

Mum and Dougie strolling down the street in Banff

Dougie has decided that he needs to earn his keep around here. Or perhaps he decided that he needed to do something cute so he could get a blog entry. Either way, Dougie decided to take out the trash today.

He’s becoming such a big help

He would be more of a help if he knew where to grab the bag

Perhaps we should continue to let Scott be in charge of the trash

We were so glad to be able to pull our kicking chair back out. Dougie LOVED the chair when he was younger so we hoped Connie would have the same reaction. Well, she did. She’s already learned that she can kick and it will play music. She’s constantly moving her feet and trying to get the thing going.

Thinking hard about what she needs to do next

YAY! Got the music and lights going and enjoying the results.

Rock and Roll!

Connie gets partial points for rolling. Scott put her down for some tummy time last night and then checked on Dougie. When he returned, Connie was on her back. Of course, no one saw her roll and she wouldn’t do it again. Dougie did something similar so we expect she’ll be rolling within a week or two. In the meantime, we practice.

We’ve made it to Calgary and finally managed to find the camera. We are all adjusting well to our new house and city. We’re still trying to meet some moms and other kids for Dougie and Connie to play with but we’re making strides there.

The moving company delivered the boxes on Monday. My sister, Laurie, came by on Tuesday and was a huge help getting things unpacked. We’re very close to getting everything put away and organized. It’s really starting to feel like home.

Because my time has largely been spent trying to get unpacked, I’ve been working on various entertainment options for the kids. Dougie is easy, a Bob The Builder DVD and he’s set. Connie is a bit harder. We pulled out the Bumbo though to see if she would sit in there. She loved it!

Dougie posing with Connie in the Bumbo

Connie gets a moment to herself

All in all, we’re doing well. Now that we’ve found the camera, we should be able to update quite a bit more frequently.

Yesterday, two guys came to pack up the house and today, the moving van came. It looks like this move to Calgary may really happen. Only one more full day until we leave and to say we’re a bit stressed would be an understatement.

Fortunately, the kids are taking it in stride. Connie managed not to get herself packed into a box.

Dougie, who is quite literally taking things in stride, managed to get his new orthodics today. He’s walking better already.

We have to go in tomorrow to get a small adjustment made on them because they are rubbing a bit but then he should be good to go until he out grows them. I was most thrilled that he didn’t seem to mind them at all. We will need to get a pair of inside shoes for Calgary though because he has to wear shoes with them (they’re too slippery otherwise).

As many of you know, we are currently preparing for a temporary relocation to Calgary. We have been in the throws of getting things ready for the packing people who arrive tomorrow.

Dougie has been helping

The question is, does he not want her packed into a box or does he not want us to bring her?